Comments on: Monochromacy – Complete Color Blindness http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/ Color Blindness viewed through Colorblind Eyes Sun, 14 Mar 2010 14:46:20 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Pam http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/comment-page-1/#comment-54002 Pam Mon, 04 Jan 2010 13:59:01 +0000 http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/#comment-54002 My mother was born completely color blind and legally blind. Is this the same thing. Her sister a year older then here has the same condition, they are the only 2 out of 5 kids (with one being a boy) in the family with this. Neither parent are color blind. My mother has never given me a diognosis of her sight, she gets upset. Any help?? My mother was born completely color blind and legally blind. Is this the same thing. Her sister a year older then here has the same condition, they are the only 2 out of 5 kids (with one being a boy) in the family with this. Neither parent are color blind. My mother has never given me a diognosis of her sight, she gets upset. Any help??

]]> By: Renee Carman http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/comment-page-1/#comment-39341 Renee Carman Tue, 10 Nov 2009 02:36:45 +0000 http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/#comment-39341 My son was involved in a traumatic brain injury 2 years ago. At first all colors were very bright and then everything faded to black and white and has been that way ever since. It has been mentioned that he may suffer from Cerebral Achromatopsia, but so little seems to be known that they don't even feel comfortable giving that diagnosis. Any information that we can obtain, especially as it may relate to him some day getting his color vision back, would be greatly appreciated. My son was involved in a traumatic brain injury 2 years ago.
At first all colors were very bright and then everything faded to black and white and has been that way ever since. It has been mentioned that he may suffer from Cerebral Achromatopsia, but so little seems to be known that they don’t even feel comfortable giving that diagnosis.
Any information that we can obtain, especially as it may relate to him some day getting his color vision back, would be greatly appreciated.

]]> By: Heidi Danna http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/comment-page-1/#comment-36751 Heidi Danna Tue, 27 Oct 2009 17:54:57 +0000 http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/#comment-36751 My son has blue cone monochromacy and he will be turning 16 soon. He is watching all of his friends get their driving permits and licenses. His low vision and color blindness has never had such an emotional effect on him until lately. With yesterday's news of the successful gene replacement therapy in the 9 year old boy, I have been searching the internet all day today looking for a clinical trial for my son. I was able to read that a trial for achromatopsia is going to be open soon. Will blue cone monochromacy qualify for the achromatopsia trial? Also, if you know of any blog specifically for BCM, could you please forward me the link? Any parents with children diagnosed with this disorder can feel free to contact me directly through email at hdanna@uninets.net. I was told that this is a disorder that has only been linked to my family; therefore, I'm guessing that if we did the genealogy, we may discover that we are related. My son has blue cone monochromacy and he will be turning 16 soon. He is watching all of his friends get their driving permits and licenses. His low vision and color blindness has never had such an emotional effect on him until lately. With yesterday’s news of the successful gene replacement therapy in the 9 year old boy, I have been searching the internet all day today looking for a clinical trial for my son. I was able to read that a trial for achromatopsia is going to be open soon. Will blue cone monochromacy qualify for the achromatopsia trial? Also, if you know of any blog specifically for BCM, could you please forward me the link?

Any parents with children diagnosed with this disorder can feel free to contact me directly through email at hdanna@uninets.net. I was told that this is a disorder that has only been linked to my family; therefore, I’m guessing that if we did the genealogy, we may discover that we are related.

]]> By: Jamie http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/comment-page-1/#comment-32672 Jamie Mon, 28 Sep 2009 22:01:36 +0000 http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/#comment-32672 Love the site. As a pretty severe red-green color weak guy one of the most frustrating aspects is attempting to explain to others what things look like. Any additional comparison images would be very very helpfull. Thanks! Love the site. As a pretty severe red-green color weak guy one of the most frustrating aspects is attempting to explain to others what things look like. Any additional comparison images would be very very helpfull. Thanks!

]]> By: .colblindor « fin. http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/comment-page-1/#comment-31960 .colblindor « fin. Thu, 17 Sep 2009 07:15:31 +0000 http://www.colblindor.com/2007/07/20/monochromacy-complete-color-blindness/#comment-31960 [...] #15 There are people which are really suffering from complete color blindness, which is called achromatopsia or monochromacy. [...] [...] #15 There are people which are really suffering from complete color blindness, which is called achromatopsia or monochromacy. [...]

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